Cleft Lip & Palate Awareness Week #CleftAware #CleftStrong

cleft palate awareness week

I promise I’m working on a real, actual blog post with more than a few words. I wanted to take advantage of Wordless Wednesday to join in on Cleft Lip and Palate Awareness Week though! As you know, Brynlee was born with Pierre Robin Sequence as well as a cleft of the soft palate. She is scheduled to have her cleft repair surgery at 10 months old in September. Because of her cleft, she doesn’t have suction like normal babies- think of it like a straw with a hole in it- so she cannot take normal bottles. She has a g-tube and is tube fed almost exclusively now. She did well with the Piegon Nurser (special needs bottle that works by compression not suction) but then her reflux worsened and we had to stop oral feeds. We are hoping to try again soon!

cleft palate awareness week

Here month five post is coming soon. Lots of good news to report after a difficult few months!

Glow Stick Party – Family Fun

Glow Stick party

Last week, the kids and I were sitting at the dining room table playing with a fresh batch of homemade play dough when out of no where, Bryson asks if we can have a glow stick party later that night.  Unsure of exactly what a “glow stick party” consisted of, I agreed anyways because we keep glow sticks on hand.  I didn’t think anything else of it until Bryson asked again while we were eating dinner that night.

Glow Stick party

That was all it took.

After dinner, Justin gathered up our glow stick party kit and went to work.  This glow stick party kit on Amazon is very similar to what we used, but I bought ours at Hobby Lobby.  Justin created sunglasses, rabbit ears, necklaces, bracelets, etc.  He kept going until he had used all of our glow sticks.  (Great stocking stuffer idea!)

Glow Stick party

Then, we turned off all of the lights and turned up the music.  Bryson and Bella LOVED it.  For the next hour or so, we did nothing but dance, laugh, and play.  When bedtime came, the kids went to sleep holding tight to their glow sticks.

glow stick party

We created some fun memories, definitely burned a few calories, and enjoyed quality family time.  It’s a great way to beat cabin fever this winter.  Throw a glow stick party!  I still have no idea where Bryson came up with the glow stick party idea, but I’m sure glad he did!

A Peek into Our Week

Bryson Oct IGB.com

Looking back through my Wordless Wednesday posts (that are never, ever actually wordless) made me realize how much I enjoy being able to easily scroll back through my favorite photos and catch a quick glimpse of our lives.  So I’m going to try to make it a habit to share a peek into week each Wednesday.

I know, I know.  Halloween is long gone and people already have their Christmas trees up.  But, can I share another Halloween photo anyways?  I was browsing through my photographs and this one was begging me for a quick edit and to be shared.  This little girl is beginning to settle down a bit.  She’s still fiesty and a little fireball, but she has such a sweet and kind heart.  She loves to talk about Brynlee and give her kisses.  She wakes up every morning and crawls into bed with me if I’m not already up.  She’ll either drift back off to sleep in my bed or we’ll spend a while chatting and cuddling.  Her new thing this week is to bring her detangler spray and a hair brush and brush my hair while I’m still in bed.  She melts my heart and I cannot wait to see her with her little sister.

Spidergirl Halloween

This boy is so hard to parent right now. I’m feeling tested 24/7 and it seems like it came out of nowhere, but I know that he is probably feeling the stress of a new baby coming- another sister, at that- and he isn’t sure how to communicate his feelings.  I’m trying to cut him some slack and offer more positive attention, but he’s not making it easy.  This parenting thing is hard sometimes.  And he’s not even 5 yet.  He’s a lot like me in that he is very nervous when he isn’t sure what to expect, so I think that has a lot to do with it.  I’m hoping to spend a lot of time with him (and Bella) during the next couple weeks and hopefully ease his anxiety.

Bryson Oct IGB.com

Happy Wednesday!